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Health education resources specific to sexual and gender minority identities remain lacking

Regardless of satisfaction with overall care, substantial proportions of survivors reported lacking vital health education resources specific to their SGM identities. Areas where the lack was found included mental health (69%), physical activity (91%), tobacco use cessation (89%), and alcohol consumption (86%).

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Health education materials made specifically for members of sexual and gender minority (SGM) groups play a pivotal role in SGM cancer survivors’ care satisfaction and experiences.

This is according to a study – “Overall Satisfaction with Cancer Care Among Sexual and Gender Minority People and Their Utilization of Identity-Tailored Health Education Materials” by Colin Burnett, Reece Lyerly, and Bill M. Jesdale – that appeared in LGBT Health.

For this study, the researchers identified 2250 SGM cancer survivors who completed the “OUT: National Cancer Survey,” conducted by the National LGBT Cancer Network in 2020–2021, and classified participants by their self-reported satisfaction with overall cancer care. They then examined care satisfaction in relation to use of SGM-tailored health education resources and factors surrounding their SGM identities, which may influence their satisfaction, including feelings of safety with care teams.

The study found that:

  • regardless of satisfaction with overall care, substantial proportions of survivors reported lacking vital health education resources specific to their SGM identities
  • areas where the lack was found included mental health (69%), physical activity (91%), tobacco use cessation (89%), and alcohol consumption (86%)
  • among SGM survivors who felt safe with members of their care team knowing their SGM identity, only 3% were less than satisfied with their overall cancer care, compared to 38% who felt unsafe

“SGM survivors value tailored information and health education resources that incorporate their intersectional identities,” stressed the researchers.

They, therefore, recommend that:

  • more research must be done to elucidate why SGM survivors do not receive these materials, while creating spaces where they feel safe receiving care; and
  • focus be given on increased delivery of SGM-tailored materials and prioritization of SGM safety in health care as these may have implications for overall cancer care satisfaction among SGM survivors.
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